We are very pleased to tell you that we are partnering with an amazing organisation called The Wren Project. The Wren Project is a registered UK charity, founded in 2020, that works to support individuals with the emotional and mental impact arising from a diagnosis of autoimmune disease. Most people with thyroid disease have the autoimmune […]
The Medicines and Healthcare products Regulatory Agency (MHRA) have published new guidance regarding levothyroxine The MHRA have just published new prescribing advice for healthcare professionals who prescribe levothyroxine due to reports of some patients experiencing symptoms on switching between different tablet products. Levothyroxine is usually a generic product i.e. a copy of a previous brand […]
We want to make sure that people are aware that if one member of the family has thyroid disease, they need to keep a lookout for symptoms in their siblings and their children. In a recent population based study, 22 million individuals were followed up – 12 million families – to see if there were […]
We are extremely pleased to tell you that Thyroid UK has won a Social Care award for the Most Dedicated Thyroid Health Support Organisation 2021. This has been awarded by Global Health and Pharma, a global information sharing platform & a multi-disciplinary members community. GHP was stablished to enhance communication networks & collaboration across all […]
It has been a very busy year for us and also very challenging. We’ve responded to many requests for information about COVID-19 from anxious thyroid patients, whilst also maintaining our T3 campaign. This involved lobbying the Regional Medicines Optimisation Committee and NICE to finalise their guidance “Thyroid Disease: Assessment and Management”, which was published in […]
Together with our thyroid partners, we ran a survey in November 2019 to look into the prescribing practices of CCGs across England since the NHS England guidance was published – the T3 Prescribing Survey 2019. Our survey clearly shows that there are still many CCGs withdrawing or not allowing the prescribing of liothyronine even though […]
We are working hard to ensure that patients can access the thyroid medication they need such as liothyronine, hence our #T3Campaign. If you want to find out more about our #T3Campaign, you can find all the information you need on our campaign page including the following: our input into the NHS England guidance for liothyronine […]
Dr Myhill’s book, “The PK Cookbook – Go Paleo-ketogenic and get the best of both worlds”, is a straightforward nutritional plan combining the health benefits of the Paleo and Ketogenic diets. You can find her book on Amazon.co.uk – https://tinyurl.com/roawqv8 However, if you use this link – https://smile.amazon.co.uk/ch/1125270-0 – you can register with Smile.amazon and choose […]
This year has seen our campaigning work continue in response to the high number of emails and comments on our social media pages from people who have had their liothyronine withdrawn or who have not been allowed a trial of liothyronine. We have been working hard to change NHS policy and to help people regain […]
Thyroid UK and other thyroid groups have been working with RMOC to clarify the guidance they published last November. We all felt that their guidance was not clear enough for CCGs and clinicians in respect of some patients needing T3. We are pleased to say that this updated guidance has been published today. Although the guidance […]
You may be aware that a coalition of thyroid organisations, including the British Thyroid Association (BTA), worked together on a Dossier for the Lord O’Shaughnessy in respect of the harm being done to patients in respect of the NHS England guidance on liothyronine. After the publication of the Dossier, the Regional Medicines Optimisation Committee (South) […]
Thyroid UK, along with other thyroid groups including the British Thyroid Association, has worked on a dossier that was requested by the Lord O’Shaughnessy, the Parliamentary Under-Secretary of State for Health and Social Care. He wanted to see clear evidence that NHS England Guidance was not being followed by CCGs in respect of the prescribing of Liothyronine […]
The dossier of evidence requested in the Regret Debate led by Lord Hunt in respect of liothyronine has been worked on for many weeks by Thyroid UK, The Thyroid Trust, Improve Thyroid Treatment Campaign Group, Midlands Thyroid Support Group, British Thyroid Foundation, Thyroid Patient Advocacy and Thyroid Support Group Norfolk and the British Thyroid Association. […]
This year has seen our campaigning work stepped up to an unprecedented level in response to the backward steps taken by UK health authorities with regard to thyroid treatment. Read our 2018 Annual Report. Our work has never been more important for our members and we have worked tirelessly to change UK policy and help […]
A very good meeting was held at the House of Commons with Thyroid Trust, ITT, Midlands Thyroid Support, Norfolk Thyroid Group, TPA, BTF and BTA. It was agreed that we would all work on a document with evidence for Lord O’Shaughnessy regarding CCGs not adhering to NHS England guidance on liothyronine. It was very good […]
As you may know, Lord Hunt of Kings Heath led a regret debate in the House of Lords on Wednesday 20th June, which went really well. What you may not know is that the person who actually first brought the whole problem to the attention of Lord Hunt was a lady called Kath Bell who was […]
Lord Hunt of Kings Heath has secured a Motion to regret – Branded Health Service Medicines (Costs) Regulations 2018 on Wednesday 20th June in the House of Lords at around 7pm. The actual Motion is: Lord Hunt of Kings Heath to move that this House regrets that the Branded Health Service Medicines (Costs) Regulations 2018 do not […]
Thyroid UK and ITT travelled to London yesterday to meet with NHS England and NHS Clinical Commissioning to voice our concerns about T3. The meeting was attended by Julie Woods, CEO of Clinical Commissioning and Alex Williams, Deputy Director, Medicines Policy at NHS England. We put forward concerns including the fact that the NHS England […]
An adjournment debate has been tabled by Vince Cable MP, Leader of the Liberal Democrats for Monday 21st May at 2.30pm, so we have designed a template email that is shorter than the other one and includes the debate info. Download the template.
We need your help! Please contact your MP We are pleased to announce that Thyroid UK has been working with ITT (Improve Thyroid Health) and TPA (Thyroid Patient Advocacy) on a joint report entitledImproving T3 Prescription in the UK – a Joint Campaign on behalf of Thyroid Patients which has been sent to Mr Simon Stevens, […]
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