I had my thyroid removed in November 2014 whilst I was working in Abu Dhabi. The reason for this was a benign tumour – although I am now aware that the treatment I received was dramatic and would not be the first course of action by NHS doctors, this does not change the situation. Previously I had never suffered any thyroid issues and was very active, super multi tasked orientated and without effort, maintained a regular weight of 8 stone. I am 5 foot.
Since the removal of my thyroid I have lived in a fog, with rapidly increasing weight – I am now 11.5 stone, I have 0 energy and up until recently was lucky if I was even able to get up during a day due to low mood and exhaustion. Needless to say I no longer work.
Via all the endocrinologists I have seen, no support has been given as my bloods seem normal. I have been advised twice to look at obesity clinics – my food intake is small as I only eat once a day as cooking is too much effort.
I recently managed to source T3 from abroad after having to self-diagnose and medicate; not that I can afford this but I am DESPERATE. I am sure I did not increase the dosage safely but as I had no guidance, I simply increased my dosage by 25mg ever week until I felt some improvement.
I am now on a dose of 75mg and for the first time in so many years actually feel ME again. I have missed ME so much – it has only been 2 weeks but EVERYTHING has changed; the low mood, energy, thinking….and hopefully my weight will also start decreasing.
I was a teacher and used to love my life, working all over the world. I am really hoping that maybe I can get back to this now I have energy to get up again. It’s like a light has been switched on.
I’ve lost so much time, nearly 10 years of my life – a time when I was / should have been looking for a life partner, having children, promotion, settling down. I feel that was all taken from me due to T3 not being prescribed for my treatment. This time has passed as has my opportunity for having children as I have now gone through menopause and getting back into teaching will be very difficult for me after so long out of the industry.
Please, I do not want anyone to go through what I have endured for the past few years. There was little point in me being alive if I am honest – I served no purpose to the world or myself. I literally was the living dead and all due to lack of T3 being available on prescription…..I cannot fathom the logic!
Share your story
Have you become well again after a long struggle with a thyroid problem? Will you share your story with others to give them hope and encouragement whilst they travel their own personal road to thyroid wellness?
We rely on donations so that we can continue to support and campaign for people with thyroid and related conditions. If you have found our information helpful, please make a donation or become a member.